Last Thursday, I saw my neurologist. I finally heard the words I've been waiting for...I have the option to discontinue the anti-seizure medication. That's the good news. With that option, she also gave me a lot of cautionary advice that if it has been the medication that has been preventing another seizure and I stop it, I may start to have seizures again and would not only have to go back on the medication, but wouldn't be allowed to drive for several months until they were sure the medication was at its full efficacy. There is no rush to make this decision. I can decide to begin easing off at any time, although she did suggest I wait until after the holidays.
The reason I am at risk for seizures is that even though the lesion(s) that caused them are gone, there is scar tissue there now. Depending on the size and location of the scar tissue, it could potentially cause seizures without preventive medication.
So, what to do? I've been wanting to get off this medication for a long time. I hate taking drugs, which I have to do regardless, but anytime I can get off of one is great. It is a nuisance to fill the prescription, to figure out when to take the pills when traveling across time zones and just having to take them at all.
I will mull these options over for a few weeks. I'm leaning toward taking a walk on the wild side and going off the medication. But we will see. Your thoughts and suggestions are welcome if you wish to comment on this post.
Thanks.
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