Once again, I apologize for a late update on recent doctors' visits. No good excuse for the delay, other than general busy-ness (yes, I'm using that word again!) and the fact that there are no real big changes to report.
August 15, I had a CT scan on the lungs that showed stability and even some slight reduction in lesion size and number. Similar reports have come through the past few months for the head and lungs, To me, that seems like a pretty strong argument to just keep doing what I am doing for a while. I've decided against having the radiation treatment that I'd been discussing with Dr. Bonomi and Dr. Marwaha (radiation oncologist).
On Friday, August 12, I had an eye appointment with a new optometrist and although my eyes, seemed worse to me based on those crazy tests they do, he changed my lens prescription and lowed some of the powers of the lens adjustments. All the other tests went well too - no signs of cataracts, macular degeneration or any other nastiness.
On Monday, August 22, I had an appointment with Dr. Angelopolous, my neurologist. It was mostly bringing her up to date on the things that have been going on since we last met in early March (just before the seizure.) She was glad to see the stability in the most recent reports.
The new Liftkar is working out really well and the caregiver confusion seems to have straightened out and it all is working out.
Coming up next on Monday, September 12 is a MRI to the brain and lower spine and the usual blood work and Avastin infusion. Long day!
Hope there won't be any news to report before then. Happy Labor Day!
Wednesday, August 31, 2016
Wednesday, August 17, 2016
More Good Days than Bad Lately
Hi everyone,
I'm a couple days late on posting my latest medical results and related activities due to technical difficulties and general busy-ness (If you know a better way to spell that word, please let me know.)
The new caregiver is awesome and we are so delighted to have her. Although I learned today that
I will have to share her with other people I recommended her to. I'll have a different caregiver from the same family group two days a week and the one we've been so impressed with over the last couple weeks will still work with us 3 days a week.
The Liftkar that we exchanged the previous one for is a million times better and I've been getting around the house and outside the house more often and with more ease.
The doctor's appointment last Monday at Rush had all good results. Lungs are stable, for the most part. Blood work improved overall and there are no new concerns.
I'm showing some slight improvement in strength and balance with physical therapy.
I'm not seeing myself standing or walking any better, but everyone else - Dr. Bonomi, Irene, Physical Therapist, Caregivers, and Doug all say so.
As always, I thank you for your interest, support and care. This Saturday, August 20 marks 6 years since I received my diagnosis. It has been quite a trip and I so appreciate you being there for me and taking an interest in my ride.
I'm a couple days late on posting my latest medical results and related activities due to technical difficulties and general busy-ness (If you know a better way to spell that word, please let me know.)
The new caregiver is awesome and we are so delighted to have her. Although I learned today that
I will have to share her with other people I recommended her to. I'll have a different caregiver from the same family group two days a week and the one we've been so impressed with over the last couple weeks will still work with us 3 days a week.
The Liftkar that we exchanged the previous one for is a million times better and I've been getting around the house and outside the house more often and with more ease.
The doctor's appointment last Monday at Rush had all good results. Lungs are stable, for the most part. Blood work improved overall and there are no new concerns.
I'm showing some slight improvement in strength and balance with physical therapy.
I'm not seeing myself standing or walking any better, but everyone else - Dr. Bonomi, Irene, Physical Therapist, Caregivers, and Doug all say so.
As always, I thank you for your interest, support and care. This Saturday, August 20 marks 6 years since I received my diagnosis. It has been quite a trip and I so appreciate you being there for me and taking an interest in my ride.
Tuesday, August 2, 2016
Caregivers and Liftchairs
Hi folks,
Just want to thank those of you looking for caregiver contacts on my behalf. We started the interview process on Thursday, July 28, but the first candidate was not a good fit. We interviewed a very experienced and nice mother and her two adult daughters on Saturday, July 30th and they fit the bill very well. One of the three of them will be here for five 12-hour days each week. (In my prior post, I mentioned that we are looking for a new caregiver for at least 2 days and possibly 5 days a week.)
We hired them on the spot.
I really appreciate your help in finding resources.
Second item is that the Liftkar that we purchased a couple weeks ago is going to be replaced by the vendor, 101 Mobility with a different version that has a chair built in instead of attaching to a wheelchair. We think will be easier to use on many levels and hopefully, will allow me greater mobility and access to the outside.
Once again, thanks to everyone reading this blog for their concern and support.
All the best,
DonnaLee
Just want to thank those of you looking for caregiver contacts on my behalf. We started the interview process on Thursday, July 28, but the first candidate was not a good fit. We interviewed a very experienced and nice mother and her two adult daughters on Saturday, July 30th and they fit the bill very well. One of the three of them will be here for five 12-hour days each week. (In my prior post, I mentioned that we are looking for a new caregiver for at least 2 days and possibly 5 days a week.)
We hired them on the spot.
I really appreciate your help in finding resources.
Second item is that the Liftkar that we purchased a couple weeks ago is going to be replaced by the vendor, 101 Mobility with a different version that has a chair built in instead of attaching to a wheelchair. We think will be easier to use on many levels and hopefully, will allow me greater mobility and access to the outside.
Once again, thanks to everyone reading this blog for their concern and support.
All the best,
DonnaLee
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